Ruth works on ethical questions raised by medical practices and new technologies at the beginning and end of life in different socio-cultural contexts. Her research is at the intersection between sociology, bioethics and law/social policy. She has developed a comparative empirical bioethics approach to understand how ethical problems arise and are addressed in clinical settings where ethically sensitive decisions are made. Her approach combines literature review (e.g. professional literature, legal texts, professional guidelines, daily media), concept analysis (e.g. autonomy, dignity, empathy, solidarity in different socio-cultural contexts) and ethnographic research (interviews, observations, focus group discussions).

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National Genomic Programmes

Ruth is founder and co-lead, with Jennifer Merchant, Universit¨¦ Paris-Panth¨¦on-Assas, of? UK-FR-D+ GENE?(UK-France-Germany+ Genomics and Ethics Network), a network for researchers, policy-makers and?practitioners from the UK, France, Germany and other countries (e.g. Israel, the Netherlands, Danmark, Belgium, Poland) to reflect on the ethical questions arising from the implementation of large-scale genomic initiatives (e.g. Genomics England, Plan France ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ecine Genomique 2025, GenomDE) in each national context. If you are interested in our network, please get in touch!

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Genetics and Genomics at the Beginning of Life

Ruth is currently leading a project, together with Aviad Raz (Ben Gurion ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿), on the practical and ethical questions arising from different approaches to genetic testing and/or screening for Cystic Fibrosis (CF) in Germany and in Israel. The project is funded by the DFG.

She is also leading an? ESRC-funded project?exploring the ethical questions raised by the introduction of non-invasive prenatal testing (NIPT) into routine antenatal care in England, France and Germany.

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Previously, she has done research on the ethics of the prenatal assessment of genomes and exomes as part of the UK-wide? PAGE project.?

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End of Life

In her previous research, Ruth has examined ethical questions at the end of life (e.g. assisted dying, continuous deep sedation, advance directives) with a particular focus on the tensions between patient autonomy and physicians' responsibility to protect life.

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Covid-19

Ruth is country team leader of the French study ' COVID-19: Comment cela vous affecte-t-il?' which is part of a multinational project on 'Solidarity in times of pandemics', led by Professor Barbara Prainsack at the ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Vienna.

Ruth Horn is professor of medical ethics and deputy director of the IEHHS, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Augsburg and associate professor of ethics at the ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Oxford. She studied sociology at the Ludwig-Maximilians ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿, Munich, and the ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Paris Diderot. In 2009, she completed her PhD in Sociology of Ethics at the Ecole des Hautes Etudes en Sciences Sociales, Paris. From 2010 to 2013, she was a Marie Curie Fellow at the Centre for Ethics in ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿icine, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Bristol. Since 2013, Ruth has been a member of the? Ethox Centre, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Oxford. In 2021, she joined the IEHHS, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Augsburg. Ruth is also an associate member of the? SPHERE?research centre, CNRS, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Paris Diderot.

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Ruth is regularly engaging with and contributing to the development of policy:

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Inter-/National level

2022: Ethical Guidance of the UK Joint Committee on Genomics in ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿icine (R. Horn, A. Lucassen, A. Hall): ''. Royal College of Physicians, Royal College of Pathologists, and British Society of Genetic ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿icine.

2020: Contributor to Written evidence from the Wellcome Centre for Ethics and Humanities (COV0156) into The Government¡¯s response to COVID-19: human rights implications. 2020: https://committees.parliament.uk/writtenevidence/8681/html/

2019-2020:?Chair of the British Society of Genetic ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿icine (BSGM) working group on ¡®prenatal, preconception, pre-implantation genetic testing/diagnosis¡¯, BSGM Ethics and Policy Committee.

2019: Review of the Royal College of Obstetricians and Gynaecologists¡¯ Scientific Impact Paper on ¡®Evidence to Support the Clinical Utility of Prenatal Exome Sequencing in Evaluation of the Fetus with Congenital Malformations¡¯.

2018:?Review of Briefing Note ¡®Whole genome sequencing of babies¡¯,?Nuffield Council of Bioethics.

2018: Policy-consultation with the French ¡®General Inspectorate of Social Affaires¡¯ (Inspection General des Affaires Sociales, IGAS), to inform report ¡®?valuation du plan national 2015-2018 pour le d¨¦veloppement des soins palliatifs et l¡¯accompagnement en fin de vie¡¯ (eds.?N. Bohic, F. Fellinger, M. Sa?e and L-C. Viossat), telephone interview with L.-C. Viossat, 23.01.2018.?

2017: Advisory group on ¡®Advance Directives¡° of the French National Centre of Palliative Care and the End of Life (Centre National des Soins Palliatifs et de la Fin de Vie), Paris, resulting in the report (eds.?I. Marin, S. Bretonniere) ¡®Un an de politique active en faveur des directives anticip¨¦es. Quels progr¨¨s, quelles limites, quelles pistes pour l¡¯avenir ?¡¯, 2018.

2014: Policy-consultation with the Parliamentary Mission of Information on ¡°End of Life¡±, organised by J. Leonetti and A. Claeys, French National Assembly, Paris, 08.10.2014.?The resulting report informed the 2016 law on the end-of-life ¡®Loi 2016-87 du 2 f¨¦vrier 2016 cr¨¦ant de nouveaux droits en faveur des malades et des personnes en fin de vie. Journal Officiel 2016.?0028¡¯.

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Local level

2020: ¡®Guidance for research in response to humanitarian emergencies¡¯,?CUREC, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Oxford

2020:?¡®Data Handling Scoping¡¯ (workshop),?CUREC, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Oxford

2019: ¡®Empirical studies involving qualitative research methods¡¯ (OxTREC application?guide)

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Awards

2024: Adjunct Professor of ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ical Ethics, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Augsburg

2020: Associate Professor in Ethics, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ical Sciences Division, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Oxford

2015: ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ Research Lecturer, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ical Sciences Division, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Oxford?

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Research grants/ PI

2023: Deutsche Forschungsgesellschaft, Middle East Cooperation,?HO 7477/1-1, PI, Co-PI: Prof. Aviad Raz, Ben Gurion ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿, IL, Project title: 'Genetic testing and/or screening for cystic fibrosis in Israel and Germany: The interplay of policies and socio-ethical considerations', €432.424.

2020:?Economic and Social Research Council, Research Grant,?ES/T00908X/1, Project title: ¡®Non-invasive prenatal genetics and genomics in England, France and Germany - Exploring practical ethical issues 'on the ground'¡¯, ?908.340.

2020:?ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ical Division COVID-19 Research Response Fund, British Academy Special Research Grants: Covid-19, Co-I, Project title: ¡®COVID-19: Comment cela vous affecte-t-il?, Une ¨¦tude qualitative comparative et longitudinale¡¯, country lead for French study arm of multinational project: ¡®Solidarity in times of a pandemic: What do people do, and why?, led by Prof. B. Prainsack, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Vienna, ?19.250.

2020: NDPH Pump Priming Award, Nuffield Department of Population Health, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Oxford, Co-I, to investigate the ethics of ¡®Synthetic Cohort Studies and Biobank¡¯, ?28.590.

2013 ¨C 2016: Ethics and Society Research Fellowship, 100553/Z/12/7, Wellcome Trust, PI, Project title: Between patient autonomy and physicians¡¯ responsibility to save life: The implementation of advance directives in three European countries (England, France, and Germany), ?173.658.

2010 ¨C 2012: Marie Curie Intra-European Fellowship, ADVANCED-FP7-PEOPLE-2009-IEF-254825,?European?Commission, PI, Project title: Advance directives in England and France, €171.741.

2010-2012: Post-doctoral Grant,?Ligue Nationale Contre le Cancer, PI, €70.000.

2005 ¨C 2009: PhD Grant,?Caisse Nationale d¡¯Assurance Maladie des Travailleurs Salari¨¦s?(CNAMTS), PI, €60.000.

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Small grants

2020: Seed-Meeting Grant, Co-I, Higher Education, Research and Innovation Department, Embassy of France, London, workshop entitled ¡®UK-FR GENE (Genomics and Ethic Network)¡¯, October 2020, ?6000.

2019: Big Data Institute Workshop Grant, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Oxford, PI, to contribute to a French-UK workshop entitled ¡®Comparative Perspectives on Ethical, Legal and Social Issues of Genomics in Research and Practice¡¯, ?7800.

2019: French Embassy Workshop Grant, Co-I, Higher Education, Research and Innovation Department, Embassy of France, London, to contribute to a French-UK workshop entitled ¡®Comparative Perspectives on Ethical, Legal and Social Issues of Genomics in Research and Practice¡¯, €2500.

2014 ¨C 2018: Junior Research Fellowship, Linacre College, Oxford, ?300 per annum.

2014: Society and Ethics Small Grant, Wellcome Trust, PI, to organise a workshop entitled ¡®Autonomy and Solidarity two conflicting values in bioethics? British and French perspectives on two core values in health care and medicine¡¯, ?3.070.

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Visiting fellowships

Sept/Oct 2020: Guest researcher of the DEA Programme (Directeurs d¡¯?tudes Associ¨¦s, or Associate Research Directors), Fondation Maison des Sciences de l¡¯Homme and French Secretary of State for Universities, Paris, €3400.

October 2017: Brocher Foundation Residency Fellowship?

Project: Prenatal whole genome/exome sequencing and professional responsibilities in shaping public healthcare provision.?

March 2017: Guest Professorship, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ Paris 7, Paris Diderot, SPH¨¨re

Project: Ethical issues of prenatal whole genome sequencing €3800.

Nov/Dec 2012:?International Visiting Fellowship in ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ical Ethics, Institute for ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ical Ethics and History of ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿icine, Ruhr-ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿, Bochum (GER)

Project: Advance directives in England, France and Germany, ?4000.

May 2012:Visiting Scholar, Hastings Center (NY, USA)

Project: Ethical and economic aspects of advance directives

April 2012: Visiting Scholarship Caroline Miles, The Ethox

Project: Legal and ethical issues of advance directives ?2000.

Since 2022 Member of the scientific advisory boards of the German Human Genome-Phenome Archive

Since 2021 Member of the CNRS Ethics Committee ( COMETS)

Since 2021 Member of the Prenatal Genomics Group der British Society for Genetic ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿icine.

Since 2020 President of the? European Association of Centres of ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ical Ethics?(EACME).?

Since 2020 Chair of the working group ¡®Prenatal Genetic Testing¡¯ of the? British Society for Genetic ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿icine.

Since 2018 Co-lead and funder of? UK-FR GENE?(UK-France Genomics and Ethics Network)

Since 2018 Member of Oxford Tropical Research Ethics Committees?(OxTREC).

2018-2020 Co-lead of the discussion group ¡®Ethics und AI¡¯, Big Data Institute Film Discussion Group, ÍþÄá˹¶Ä²©ÓÎÏ·_ÍþÄá˹¶Ä²©app-¡¾¹ÙÍø¡¿ of Oxford.

2018-2020 Secretaire General of the EACME.

2016-2018 Treasurer of the EACME.

2017 Member of the advisory group on ¡®Advance Directives¡° of the French National Centre of Palliative Care and the End of Life (Centre National des Soins Palliatifs et de la Fin de Vie), Paris, resulting in the report (eds. I. Marin, S. Bretonniere) ¡®Un an de politique active en faveur des directives anticip¨¦es. Quels progr¨¨s, quelles limites, quelles pistes pour l¡¯avenir ?¡¯, 2018.

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